Getting help

If you or someone you care about is affected by Huntington’s disease, we know it can be tough. We’ve gathered information to help you understand the disease and the advice and support that may be available to help you live better with Huntington’s.

In this video below you can see the ways in which the Huntington's Disease Association can help you and your family. From the perspective of one of our Specialist Huntington's Disease Advisers, you see how Huntington's can affect a whole family and what methods our SHDA's use to help and support families. This video helps you learn about outside bodies who can also offer information, support and advice.


Find out more

If you're at risk

Huntington’s disease is caused by a faulty gene in your DNA (the biological ‘instructions’ you inherit which tell your cells what to do).

If you're showing symptoms

Although there is currently no cure, there are many ways to get help with the symptoms and challenges of living with Huntington’s disease.

If you're a carer

If you are helping someone with Huntington’s to manage daily life, you may gradually be taking on the role of ‘carer’. Many people who look after a member of their family or a partner don’t see themselves as a ‘carer’ .

If you're an older carer

If you have Juvenile Huntington's

If you think you or your child has Juvenile Huntington’s (showing symptoms before the age of 21), or you already have a diagnosis, it can feel daunting.

For children and young people

If you are a child or young person that has someone with Huntington’s in your family, this section is for you.

SHDA Service

Our Specialist Huntington’s Disease Advisory service covers England and Wales and is delivered by our team of Specialist Huntington’s Disease Advisers. All our specialist advisers are experienced and compassionate care management professionals. We understand that whole families may need our support.