Meet the executive council

The executive council of the Huntington’s Disease Association is our board of trustees. 

The trustees are there to make sure that the HDA is running well and we’re doing what the charity was set up to do. 

They ensure the charity has the money it needs and spends it sensibly on the activities it was raised for. They make sure the HDA follows the law, including preparing reports and accounts for the Charity Commission. They also make sure the HDA doesn’t break the rules in our governing document (constitution). 

Trustees use their skills and experience to make sure the charity runs efficiently. But trustees are allowed to get advice from external sources like solicitors or other experts if they need to.

All trustees make decisions about the HDA collectively, working as a team. Decisions don’t usually need to be unanimous – so long as the majority of trustees agree.

The trustees delegate the day-to-day running of the charity to the senior management team.

Meet the Executive Council

Andrew Bickerdike


Nick Heath

Honorary Treasurer

Dr Liz Howard

Vice Chair

Dr Alan Fryer


Cathy Lyon


Christine Clarke


Dr George El-Nimr


Professor Hugh Rickards


Matthew Ellison


Sian Barker


Steve Duckett